New rare genetic variants are linked to ALS, expanding understanding of genetic contributors. About a quarter of ALS cases have an identifiable genetic contributor. Findings support broader use of ...

People living with amyotrophic lateral sclerosis (ALS) in the U.S. generally prefer care models where they can see multiple healthcare providers during the same visit, rather than only regularly ...

One ALS patient received TRE-515 under the FDA program last year, and early signs suggest the therapy may help stabilize ...

That attitude may have served me then, but since my ALS diagnosis, I’ve had to adopt a new, more balanced way of thinking.

The ALS therapy candidate AP-101 significantly extended patient survival and delayed the need for respiratory support in a ...

The U.S.-based nonprofit announced Eby as this year’s award winner, recognizing her wide-ranging advocacy efforts, which include raising more than $1 million for ALS research an ...

Every new piece of equipment carries a little bit of hope, but it’s often a lot of work to adapt to it. What works for one person doesn’t necessarily work well for another, so it takes trial and error ...

A new book, “Letters to ALS,” shares personal stories from people living with ALS, families, and professionals. ALS is a ...

A new gene therapy, Celosia's CTx1000, is now being tested for ALS in a small clinical trial in Australia. The one-time treatment targets toxic TDP-43 protein clumps, a key driver of most cases of ALS ...

ACI-19626, an experimental imaging agent developed by AC Immune, may safely detect abnormal clumps of the protein TDP-43 in ...

Eye imaging may help distinguish ALS from Alzheimer’s disease by revealing differences in retinal protein deposits using polarized light.

The funding is part of the expanding ALS Research Innovation Initiative. It’s intended to support “bold” and “imaginative” projects that could address key problems in ALS using innovative technologies ...